Dec 8, 2024, 6:00 PM
Dec 8, 2024, 6:00 PM

People demand to erase their genetic data from 23andMe after latest scandal

Highlights
  • 23andMe has faced challenges including a lawsuit settlement and layoffs that raised concerns about user data security.
  • Customers can delete their accounts and request the deletion of their personal information, but the process can be confusing.
  • The ability to delete genetic data reinforces the importance of data privacy in the genetic testing industry.
Story

In response to a significant data breach and a recent lawsuit settlement, the genetic testing company 23andMe is facing increased scrutiny regarding data privacy. Over the past few months, the company announced layoffs and significant operational challenges, prompting numerous former customers to inquire about their ability to delete their genetic data. While users have the option to delete their account and personal data at any time, the process can be misleading, as not all data is removed immediately. A spokesperson from the company confirmed that once a customer opts to delete their profile, their personal information will not be used for future research, and it will be retained solely by the genotyping lab, ensuring anonymity. The situation highlights the ongoing concerns about data security and customer rights in the genetic testing industry. Before proceeding with account deletion, users are advised to download their genetic information, as failure to do so means permanent loss of data. The company recommends that customers save all their reports and raw genotyping data before initiating the deletion process, which may take up to 30 days to complete. Given the current climate of heightened awareness around data protection, this development raises important questions about how genetic testing companies manage and secure user data, and what steps consumers can take to protect their information.

Opinions

You've reached the end