Minneapolis lights up green for myotonic dystrophy awareness day

On September 15, prominent buildings in downtown Minneapolis will illuminate in green to raise awareness for myotonic dystrophy, a condition affecting children like baby Jackie Zabezhinsky. Jackie’s parents, Leo and Lauren, faced challenges when their daughter was diagnosed with the disorder, prompting them to advocate for greater awareness and understanding of the condition. They believe that many families remain unaware of myotonic dystrophy and its implications, which can lead to struggles in daily life for affected children. The Zabezhinskys have collaborated with various local landmarks, including Target, Target Field, and the IDS Center, to participate in this awareness initiative. Their goal is to encourage the public to learn about myotonic dystrophy and support families dealing with the condition. Lauren Zabezhinsky expressed her hope that advancements in medicine could lead to a cure during Jackie’s lifetime, emphasizing the importance of community support and awareness. In addition to local efforts, Minnesota's senior Senator Amy Klobuchar is advocating for federal support for research into myotonic dystrophy. She has called for $10 million to be earmarked in the upcoming appropriations bill, highlighting the bipartisan nature of the issue. Klobuchar's collaboration with Senator Roger Wicker underscores the urgency of addressing rare diseases, regardless of political affiliation. The initiative in Minneapolis reflects a broader commitment to supporting research and awareness for myotonic dystrophy, aiming to improve the lives of those affected and foster a better understanding of the condition within the community.