'Healthy' Teen Unable to Walk After Cold

A 55-year-old clinical nurse specialist, Ms. Beaumont, shares the daily challenges faced by her daughter, Amy-Louise, who suffers from Functional Neurological Disorder (FND). The condition, characterized by seizures and a range of motor symptoms, leaves patients unable to control their movements despite having intact nervous systems. With an estimated prevalence of 14-22 cases per 100,000 people, FND often leads to misconceptions, with many patients dismissed as having symptoms "all in their head." Amy-Louise's journey began in October 2022 when she experienced sudden tics while preparing for her A-levels. Initially attributing her symptoms to fatigue, her condition rapidly deteriorated, resulting in severe mobility issues. Ms. Beaumont recounted the difficulties, noting that simple tasks like drinking became nearly impossible due to constant shaking and twitching. To adapt, the family invested in a wheelchair and converted their dining room into a bedroom to enhance Amy-Louise's quality of life. In a bid for greater independence, Amy-Louise expressed hope that increased awareness of FND would help others feel less isolated and encourage medical professionals to better understand the disorder. She emphasized the importance of community support, thanking donors for their contributions, which will significantly improve her living conditions and autonomy. The family's story highlights the urgent need for recognition and understanding of FND, as they navigate the complexities of this often-misunderstood condition.